The first affects the development of RJ’s brain, while the other is a genetic disorder that can affect the structure of the heart, skull and organ development. Trisomy 9 Mosaic Syndrome has led to a hole in RJ’s heart.
RJ’s mother Angela wrote about the doctors appointments and exploratory testing RJ needed in his short time on earth so far on a GoFundMe page raising money for RJ’s medical expenses.
“In his three months on this earth he has been to 15 specialist appointments. We have insurance however, the bills keep getting over whelming.”
The family are just trying to help their little one get through these health struggles in a society where health care can rapidly become overwhelmingly expensive.
One genetic test that was ordered was denied by the family’s insurance because it was deemed to not be “medically necessary” and they are now facing a $10,000 price tag.
While most folks have shown empathyâ€”and many of those who could afford to do so have donateâ€”some chose to display hate instead.
KC had placed signs up near a local mall giving some background about RJ’s condition and asking for donations. One day he was passing the area to discover that someone had placed a sign beneath his.
Instead of displaying a similar plea for assistance or advertisement for a local rummage sale, the sign said to “let the baby die.”
A red wooden sign was propped against the pole where KC’s sign was hung. It had arrows spray painted pointing to the sign above and the text:
“Stop asking for money. Let the baby die. Itâ€™s called Darwinism. Happy Holidays.”
KC Ahlers told local news station WTVG that he was shocked by the level of cruelty displayed on the sign.
“I came out. I saw it. Immediately took the one down. There were other ones that were up, but somebody, some other good Samaritans kicked them down.”
You can view the whole interview below.
Unfortunately, displays and attitudes like thisâ€”and struggles with medical billsâ€”are all too common a sight for people living with disabilities and their families.
Several disability activists have shared the Ahlers’ story on social media and added their own perspective.
Imani Barbarin pointed out that these ableist attitudes are quite prevalent.
Emily Ladau commented on both the broken system that requires family’s to seek charitable assistance and the sick attitudes that many have towards disabled people.
Health insurance is an abomination, so people seek monetary supports to avoid financial ruin. And then in their most desperate moments, theyâ€™re told that they should just let their loved ones die because thatâ€™s how little society thinks of disabled people. https://t.co/2KS3ARG4v0
â€” Emily Ladau (@emily_ladau) November 18, 2019
Some people shared similar stories in the comments on Ladau’s tweet.Â
My daughter has serious life threatening problems. After having multiple strokes and losing a kidney we started to have fundraisers to get her to a surgery. One lady said God obviously wants her just let him have her It was one of the few times Iâ€™ve been speechless
â€” Michelle (@pmteet) November 19, 2019
Others shared feelings of hope and positivity for those who deal with hateful attitudes like this.
Cruel things like this hurt even worse now that so many people are falling prey to fascism across the globe. Hugs to you and hugs to this dear family, especially.
â€” Nardooncis Butterf.. (@nardooncis_b) November 19, 2019
KC made a very impactful statement about how he and Angela want to raise their son, and how they feel about the person who made the signs.
“We want to raise our son to not reciprocate hatred. We want to battle hatred with love. So, we obviously know somebody that did this is disturbed and we hope they get help.”Â